My Nonprofit Reviews
Isabel A.
Review for DES Action USA, New York, NY, USA
DES Action is THE place to get accurate and up to date information about diethylstilbestrol and its effects, now persisting into the fourth generation. If you need a doctor near you or have a question, if you want support or validation, check out DES Action.
Review for DES Action USA, New York, NY, USA
DES Action is the only place to go for complete and completely accurate information about DES. DES is still affecting women whose mothers or grandmothers took it. So many DES daughters and sons have health problems today. DES Action is the place to get information, share issues, get help from other people, and build a community.
Review for DES Action USA, New York, NY, USA
DES Action has, over the years, furnished accurate information and compassionate assistance to all DES survivors and allies. Now it continues to do so for the third generation and beyond.
Review for DES Action USA, New York, NY, USA
DES Action tells the truth and the whole truth. Most other sources of information continue to give misinformation, such as implying that DES has ever prevented a miscarriage. DES Action is a strong and unique source of support for people who are DES affected, for the people who love DES sons and daughters, and for the medical practitioners who treat DES sons and daughters.
Review for DES Action USA, New York, NY, USA
I'm a 62 year old DES daughter who found DES Action soon after I found out I was exposed to DES. They have been a consistent reliable source of information as I have gone through symptoms, biopsies, bleeding, and infertility. Amid all the misinformation about DES that is still written, DES Action has been truthful, scientifically-based, and trustworthy. The listserv for DES daughters has been invaluable in getting to know what's happening in the lives of others and asking questions that women can answer from their own experience. DES Action has worked so hard with the CDC and others to publicize the health effects of DES and this medical injustice.
More Feedback
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012