My Nonprofit Reviews

My mother was prescribed DES when she was pregnant with me and little did she know what the fallout would be - miscarriages, ectopic pregnancies, hormonal imbalances and premature birth resulting in brain injury for the one successful pregnancy. DES Action has gathered all available information and made it available to women & men affected by DES exposure. They've pushed for research and getting the information out to the medical community. I have seen the difference in my own doctors' visits over the years as they have gone from completely unaware of DES effects to educated and active in monitoring them. I am very grateful for the tireless advocacy of this wonderful organization. It provides a service not found anywhere else to stay current on these issues.

The news broke about the risk of a rare vaginal cancer for women exposed in the womb to DES when I was 19 - supposedly the peak age of risk. My normally peaceful mother was very upset when she called me at college to tell me. My mother's doctor had told her drugs wouldn't cross the placental barrier during her pregnancy with me. Now we know better - and that is due in part to the endless pushing and refusing to shut up and go away by DES Action. And they have never stopped pushing for testing and studies and legislation to get everyone the help they need. The effects of my exposure have been difficult but it would be harder if I didn't know why I had these problems. DES Action has been a lifeline of support and information.

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