My Nonprofit Reviews

I am a 59 year old DES daughter who has followed DES Action USA from the beginning. I was first informed of my exposure in 1971 at age 15 by my mother. DES Action has empowered us both to seek out the best medical care that we can find. We have both shared information published by DES Action with our doctors, including gynecologists, primary care physicians, dermatologists and dentists.

This organization is near and dear to my heart. Thank you to those who work and volunteer at DES Action to do so much for all of us.Thank you to my DES sisters, and brothers, who share their journey and knowledge with one another. DES Action USA is a clearinghouse of information about DES itself, studies about the long-term effects on us, and other available resources. Most of all, DES Action USA affords us an opportunity to connect with other women, and men, who offer support and caring as we deal with those effects.

pam '55, CA

I have known about DES Action since it first began. I was made aware that I was a DES daughter when the first study came out in the early seventies. I was part of a group that became "examples" of what can happen to a DES daughter when at age 15 I was "on display" at NIH as a classic example of the malformations that can occur in the reproductive system. When I found my self unable to conceive a child after four years of marriage at age 30, DES Action Campaign became an invaluable source of information and resources for referrals. Thank you DES Action. Pamela B.

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