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Review for FRAXA Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

FRAXA has provided me with a wealth of knowledge and given me all the information and materials necessary to raise awareness. I've only begun our journey with the diagnosis of fragile X for both of our boys. I just started to raise money and awareness. I wouldn't be doing so without their assistance. They have given me the tools that I need to learn and they continue to provide further learning opportunities. I would be lost without them. Just when I felt out on a limb all alone, they lifted me up and made me feel like I have support whenever I need it, just by being there and helping to give me hope and knowledge.

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For the time you spent, how much of an impact did you feel your work or activity had?


Did the organization use your time wisely?

Very Well

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Role:  Volunteer