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John103

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2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

When our daughter was diagnosed at months with TSC the Tuberous Sclerosis Alliance was a tremendous help in terms or providing us with the resources to understand and cope with the challenges ahead.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Our 3 year old daughter was diagnosed 2 years ago with TS. The Tuberous Sclerosis Alliance has been a huge support in helping us find resources to deal with daily challenges. They are also instrumental in facilitaing research towards a cure, rasing funds, and increasing awareness. It's very reassuring to myself and family knowing there's a great organization out their like the TS Alliance.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer