My Nonprofit Reviews
Deborah36
Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA
I am an adult with Tuberous Sclerosis. I am mildly affected and have been blessed to share my story with others through the Tuberous Sclerosis website. The Tuberous Sclerosis Alliance provides a wealth of resources for the newly diagnosed, their families, friend, health professionals and researchers. In the past, I have shared my experiences with other adults through the TS Alliance Match program. I've also raised money and recruited others through participation in Step Forward to Cure TSC walks sponsored by the Tuberous Sclerosis Alliance. Through the Tuberous Sclerosis Alliance, I learned about Inspire.com, an online forum for individuals affected by all kinds of illness and conditions. As a member of the Tuberous Sclerosis Alliance group, I have participated in discussions and shared my experiences with Tuberous Sclerosis in a personal journal.
More Feedback
Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
