My Nonprofit Reviews

I am a VHL patient and a Volunteer and this organization has been a life saver and a life changer for myself and my daughter who has VHL, as well. This organization has provided me with knowledge, doctors and clinics lists a community of others like me. My life and disease is supported and I am well-educated in my disease and cancer. I have never seen an organization that truly does what is says it will do. We, as patients, know the board members and the founders of this organization personally. They are involved in our lives and personally take the time to educate us and keep us informed of new information. Their are many meetings/symposiums around the world several times a year and as a Chapter Leader, I attend meetings on the regular every couple of months. This organization asks our opinions as well as our support. I am proud to be part of such a strong community of people, supporters and educators. I am proud to be on the front line of new research and solutions information. What more can a cancer patient/survivor ask for?

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