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Marime S.

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The Tuberous Sclerosis Alliance is an incredible resource for all those who live with tuberous sclerosis complex (TSC). Wether you are a parent, a grand parent, a sibling, or the individual suffering from TSC, the organization has so many helpful aspects that it's hard to name them all. The Alliance has been of much help for us for the last 9 years when our youngest kid was diagnosed with the decease. They offer and excellent website were many of the answers to the more difficult questions about the condition can be found. They advocate for our kids in a way that no one else does and keep us informed of new drugs, clinical trials, new procedures for the cure and treatment of this terrible desease. They are absolutely wonderful.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served