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Judy Fitzmaurice

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The Tuberous Sclerosis Association has provided a wonderful support system for my family and me. My grandson, John William, was born one year ago, with the genetic disease, tuberous sclerosis. The Association was there to educate us, answer questions, listen, and enable us to share experiences with other families.

The TSA is raising awareness for tuberous sclerosis. This is necessary so that funding so desperately needed for research will be secured to uncover the mysteries of the disease. In addition, the organization’s leadership, volunteers, and everyone associated with the group are dedicated to give continuous support to families. My family relies on that support. More must be uncovered, and TSA is trying hard to do just that.

The Tuberous Sclerosis Association has given us hope that our John William will have a bright and healthy future.

Judy Fitzmaurice

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer