My Nonprofit Reviews
altavt0001
459 profile views
2 reviews
Review for 1p36 Deletion Support & Awareness, Bend, OR, USA
Wonderful organization! Genuine people with lots of first hand knowledge and what happens in the world of 1 p 36 deletion syndrome Honest, caring and refreshing. My grandson is a member of this elite group and now we have so many new relationships because of this
Role: General Member of the Public
Review for 1p36 Deletion Support & Awareness, Bend, OR, USA
My Grandson Sammie Bartlett is 1 P 36! When he was first diagnosed there was very little information out there... This group has been wonderful in getting the ever so important message about 1 p 36 out there They are all so helpful in so many ways. The sharing of information is the key.
More Feedback
How would you describe the help you got from this organization?
None
How likely are you to recommend this organization to a friend?
No
How do you feel you were treated by this organization?
Badly
When was your last experience with this nonprofit?
2012
Role: Client Served
