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Cathy31

478 profile views
2 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

I was diagnosed 19 years ago with VHL and was really lost.. I found the family alliance and found lots of incredible info and so many answers. The VHLFA saved my life. They helped me find the right doctors and have always been there sometimes just to listen.

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer
 

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

The VHLFA saved my life. 18 years ago, I was diagnosed with VHL and had no idea what to do next. I called their hotline and was directed to the NIH. The family alliances news letter and website keep me updated on the disease and connected to others with VHL. Joyce the founder is an incredible person who has saved so many of us VHLers both physically and emotionally.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served