My Nonprofit Reviews

I am proud to have a 14 year old daughter with Hydranencephaly and we love the support we get from other families and also being able to share what we have learned with other families with children with Hydranencephaly. We are so thankful for this foundation. They are a great resource to have and we wouldn't be this far without their support.

Global Hydranencephaly Foundation has given me the support I need to help me take better care of my child with hydranencephaly. Whether its seeking medical advice or venting about situations they are always there for me. It is nice to be able to return the favor when someone else is in need as well. We are like one big family looking out for each other and sharing the same journey. No matter what stage we are in in the hydranencephaly diagnosis I can always depend on Global Hydranencephaly Foundation to be there for our family.

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