My Nonprofit Reviews

As a colleague within the rare disease community, it is critical to see progressive organizations like Rasopathies Network move forward with a culture of collaboration. They work well within the rare disease community, are innovative in their approach to advocacy and are on the front lines related to research for Rasopathies. Well networked, and well liked, I believe that the leaders in this organization bring a professionalism not always found in young non-profits.

Cure JM Foundation is a critical hub for all things related to this debilitating condition. The founders Tom and Shari Hume, have been incredible advocates and organizers, bringing a global JM community together and making a difference. Through their fundraising efforts they have also raised important dollars to help fund a treatment and hopefully a cure.

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