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Pamela19

141 profile views
3 reviews

Review for Williams Syndrome Changing Lives Foundation, Saint Petersburg, FL, USA

Rating: 5 stars  

Penny and her foundation have been faithful to my son and family. With up to date information on new research and we only live information from professionals to help with IEP's. Who would remember to contact me in March for summer school info.... Penny that's who.....don't know what I would do without her and my sons twin Keith....another year of awesomeness........

Role:  Volunteer
 

Review for Williams Syndrome Changing Lives Foundation, Saint Petersburg, FL, USA

Rating: 5 stars  

Williams Syndrome Changing Lives has been there for my son when no one else was. Davion was having blood pressure issues and I needed a monitor for home to chart it. Telling Penny what was going on with Davion gave me someone to talk to that knew what I was going through since her son also ha WS and Autism which is unique for our children. Without even asking I had a monitor at my door step within 2 days, and a pre- designed chart to let me know when I should be concerned about his pressure. She also assisted with pull-ups since he had bladder issues and a sensory ball chair for school and home to help with his concentration while he worked. She is currently assisting me in getting Davion into summer camp for the second year. WSCLF is more then an asset to me and my sons life, they are irreplaceable.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
 

Review for Williams Syndrome Changing Lives Foundation, Saint Petersburg, FL, USA

Rating: 5 stars  

Listened to my concerns regarding my son and took action. Excellent service, made me feel like family.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served