My Nonprofit Reviews

PSC Partners is a fabulous organization that is 100% for the patient! They provide current information about my disease and due to the wonderful conferences they put on annually, they also know all the doctors who are working towards a cure for PSC. In fact they are instrumental in getting all these wonderful doctors working on research for PSC. With the annual conferences where patients, caregivers and spouses meet, we have formed a bond as tight as family. It was at my first conference 10 years ago that I met the first person with my disease. I can’t say enough good about PSC Partners!

PSC Partners is 100% about helping their members whether they are fellow PSCers pr caregivers. Without this nonprofit, I would still feel alone with my diagnosis and unsure of what I should do. They put on a yearly conference that is simply amazing! The people who attend their annual conference almost always return annually. Love PSC Partners and their staff who care deeply about all of us.

I was diagnosed with PSC in March 2012. My GI doc told me I had the disease, said there wasn't anything he could do to help me but he would try to follow up with me and sent me on my way. With a million questions in my mind, I searched the Internet and fount PSC Partners Seeking a Cure. My first post was answered in hours by two very knowledgable fellow PSCers who made me feel welcome and helped me feel not quite so lost in this new world. Without this organization I would still be floundering in acronyms, untruths and fear. I am still looking for a doctor but will have to travel to even find a hepatologist. As of now, I still haven't met anyone who knows of this disease or that has it so I am really looking forward to attending one of their conferences. PSC Partners is a daily stop for me in Facebook. I feel like I have a home there where everyone knows my disease. :) I can't imagine how I would feel if I hadn't found this organization. One of these days I will meet the faces behind the names and I know they will be instant friends.

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