My Nonprofit Reviews
whagarman
494 profile views
1 reviews
Review for Alagille Sydrome Alliance, Washington, DC, USA
After 6 months and many tests trying to figure out what was wrong, my daughter was diagnosed with Alagille Syndrome. It was great to have a diagnosis, but what did it mean??? The Alliance was the first place I ended up. I was able to get key information for the care of my daughter. I learned about CHOP and the annual Gehman picnic. We attended the symposium in SanFrancisco. We made freinds for life. It is a community where you can go for support and ask questions. What a blessing it has been.
More Feedback
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
Role: Client Served
