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Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

When I was 18 I found that if I walked fast for a length of time, my legs would stop working. They didn't hurt. They weren't numb. They didn't tingle. I just couldn't move them until I stood still for several minutes. Then I could again walk if I went slow. Each year, I walked slower and shorter distances until three years ago when I became unable to walk unassisted. Now I am 74 years old and I am still undiagnosed! When the doctors could not figure out what the problem was, they said it was psychosomatic. But I live alone so isn't as if there is someone to cater to me. I have also always worked (and still do) so it wasn't to get out of work. Diagnosis is still in the dark ages. New tools, new tests and new protocols for diagnosis are needed. Thank heavens INOD is championing the cause for those of us who are undiagnosed.

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Role:  Volunteer