My Nonprofit Reviews
Kelly42
Review for Angel Flight Soars, Inc., Atlanta, GA, USA
We have 6 kids and 2 are medically fragile. Both have rare diseases and need to be treated by doctors far away from home. The toll on our family life and finances is immense. AngelFlight comes to the rescue by getting us to our doctors quickly (instead of us driving many hours) and without cost to us. This charity is a PRICELESS resource for us...not to mention fantastic to work with!
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
Review for APFED, Atlanta, GA, USA
My son was suffering terribly with a mysterious malady that no doctor seemed to be able to nail down. We were misdiagnosed 7 times by as many different specialists. Every time we saw a new doctor, my son would get a different title, and a different therapy. Nothing ever worked. I was desperate to help him feel better, and spent a good bit of time online, researching as much as I could from the little I knew. I eventually found the APFED website, and a detailed description of what my son's major symptoms were. Over time, I would continually come back to the APFED site to confirm my suspicions. I even made contact with someone in the disease community, who helped me tremendously by phone and email. They turned out to be a representative of APFED! My son has since been diagnosed with the condition I suspected, and APFED has continued to be a huge resource for us as we navigate the course of his disease and treatment.
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I've personally experienced the results of this organization in...
getting my son diagnosed, and a treatment center being established in my region.
If I had to make changes to this organization, I would...
Make the website more user friendly for those seeking more in-depth research and information past diagnosis. The website helped us incredibly to get diagnosed and understand what current treatment options were. However, my child seems to have a difficult case, and I would like to have easier access to any info that is more specific to hard-to-treat cases. If that type of info is on there, then I can't find it, so that needs to be changed. If it's not on there, I would love to see this type of info be added
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
How did you find this group?
By chance! Just googling my son's symptoms!
What, if any, change in your life has this group encouraged?
How to get my son the best care and treatment available to him.
