My Nonprofit Reviews

When my son was diagnosed with a severe heart defect, we were devastated. It was not until I found this site which offered support, information, and so much more, that I did not feel alone. As the years went on, my son developed another rare condition because of his Fontan heart surgery called PLE, and when i notified tchin.org that families dealing w/ PLE were dealing w/ unique situations and there really was no support groups, they added a separate PLE support group- When a loved one-especially a child- has a rare medical condition, it is devastating-knowing others are there 24/7 for information, shared experiences, and support helps in ways words cannot even begin to express. This site is a blessing.

More Feedback