My Nonprofit Reviews

My daughter was diagnosed with a devastating, life threatening type of cardiomyopathy at age 5 months. I was isolated by the dearth of knowledge available, both with the medical personnel,in medical literature and with regular people I encountered. I knew no one going through anything similiar. Then, in a doctor's office waiting room, I saw a magazine called The Exceptional Parent; in it was a tiny add for the CCF. I contacted them that day and have been member ever since, at no cost. My daughter received a heart transplant at age 13--in 2007--and the CCF team and members have been my primary support, emotionally and for practical disease-related information. My daughter, now 18, is now a Teen Ambassador for CCF. I cannot timagine what we would have done without the agency.

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