My Nonprofit Reviews

My son was diagnosed with cardiomyopathy almost 6 years ago. Ccf have helped us so much. With support and also with excellent literature for pre-school and primary school.

Cardiomyopathy is a very rare and very serious disease. When my son was first diagnosed at 4 months old I had never heard of it. I was devastated and frightened and did not know where to turn for information and support. I found the ccf website and was welcomed with open arms by parents who had been through what I was going through. they sent me information about the disease for family, teachers and our doctor. easy to read and understand. ccf always let us know whenever there is any new hope for a cure for this horrible disease. I would be lost without the kindness and advice of others who have gone through this before me.

When your Child is first diagnosed with a rare condition like cardiomyopathy it is one of the scariest things you and your family will face. Ccf is a warm and welcoming port in a storm. A wealth of imformation and caring given by people who are on the same road. I really don't know what I would have done without it.

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