My Nonprofit Reviews
Review for SADS (Sudden Arrhythmia Death Syndromes) Foundation, Salt Lake City, UT, USA
I run a website with over 550 members; most of them are parents whose children have a rare and potentially fatal heart condition called Long QT Syndrome. The people at SADS have been a key element in helping parents find resources, given guidence, assisted in working with insurance companies, helped people find doctors - the list goes on an on. They have even helped our members get questions answered by some of the top doctors in the field, on video, which we can play on the site. They have gone above and beyond my wildest expectations. I can truly say without reservation many, many families have greatly benefitted from their help.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?