My Nonprofit Reviews

For eighteen long years we had no diagnosis for our daughter . Generally every doctor we saw just started using the term " developmentally delayed " and we had no real diagnosis or prognosis . One genetic test and the long guessing game was now over . 1p36.33p36.32 . Estimated size 2.6 megabases . The 1p36 Deletion Support & Awareness has given our family a way to touch base with other families all over the world who have children with this rare and often devastating syndrome . So few doctors other than geneticists even know about what it is and how it may relate to their specialty .

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