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Review for Dravet Syndrome Foundation, Inc., West Haven, CT, USA

Rating: 5 stars  

I am a volunteer for the Dravet Syndrome Foundation.  Since the first time I read their website I wanted to volunteer.  First because I was very impressed with how hard they work raising money for research.  That gives us as parents with a child with Dravet Syndrome, hope that our kids will have better treatments.  I am very impressed with how while raising the funds they also work very hard to support and help the Dravet comunity in a way only family would do it.  They also help families by providing assistive devices and services to children who otherwise wouldn't be able to afford.  I felt very welcomed since my first e-mail contact with them.  I am very proud to be a volunteer and I wished I had more time to be more involved with such a great Organization, very professionally ran and that makes sure that the funds go to the most promising research projects that one day may find a cure to this devastating disease.

Would you volunteer for this group again?


For the time you spent, how much of an impact did you feel your work or activity had?


Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?


When was your last experience with this nonprofit?


Role:  Volunteer