My Nonprofit Reviews
Kim
Review for PLATELET DISORDER SUPPORT ASSOCIATION, Cleveland, OH, USA
Platelet Disorder Support Association (PDSA) is a GREAT organization. You’ll find helpful resource for patients with Immune Thrombocyto Penia (ITP). PDSA Provides education, treatment information from top doctors who treat ITP patients and a patient sharing forum, where you can talk with others who have had ITP for years. Their National conference is a must to attend and information received is so current, that even your treating physicians probably haven’t learned most of the information about ITP that you’ll learn about there. The opportunity to exchange information with others who face the same challenges is priceless and this organization is the place to go if you, a family member or friend has ITP. By becoming a member, the “Platelet News” you’ll receive is amazing and full of current valuable information and you’ll look forward to receiving each issue, so sign up today and get the best and current ITP information you’ll ever find anywhere. As a patient with ITP for 27 years, finding the PDSA 10 years ago was a life changing opportunity and I’m forever thankful for the continued relationship I have with them. If you’re a patient with ITP, you’ll be so happy when you go to the PDSA website, because the information available there is not available anywhere else to the extent it is available there.
More Feedback
I've personally experienced the results of this organization in...
Education and connection with other patients
What I've enjoyed the most about my experience with this nonprofit is...
Connection with other patients and the National conference
If this organization had 10 million bucks, it could...
Continue to offer TOP NOTCH information from experts who research and treat patients who have ITP.
Ways to make it better...
Nothing...I'm completely happy with my experience with PDSA
One thing I'd also say is that...
If you have ITP, you must get involved with organization, because the information provided is invaluable and will help you learn about ITP treatments and connecting with others who live with ITP is priveless.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2009
Review for Advocacy for Patients with Chronic Illness, Inc., Farmington, CT, USA
When I called Advocacy for Patients over 2 years ago, I was at the end of my rope and afraid of loosing everything we worked hard to achieve. Jennifer Jaff immediately sprung into action, guiding me on how to resolve a very complicated insurance nightmare. She’s never dropped the ball and continues to work and respond quickly to assist and resolve problems. I was consistently impressed with the HUGE impact they were able to make with very limited resources – clearly indicating a commitment to serve a population of American’s who often are severely ill and have no place to go to learn how to advocate on their own behalf. Advocacy For Patients with Chronic Illness provides the place for patients to go to educate themselves and the FREE legal services provided are TOP NOTCH and provided by an attorney with the skills and personal experience that get results. I will be forever thankful for the experience and results received from Advocacy For Patients With Chronic Illness. The books and emails I receive from them are extremely helpful and educational; even if you don’t need their services, I suggest you get in contact with this non-for-profit, read their website and order their books, you’ll be glad you did. When you realize the service, education and advocacy they offer, consider a donation, because without them, the chronically ill will loose a valuable resource. A place for education, information and advocacy, from an organization with first hand experience and who knows what it means to have a chronic illness in America today.
More Feedback
I've personally experienced the results of this organization in...
Direct assistance in resolving an insurance denial of benefits
If I had to make changes to this organization, I would...
Toot their horn as much as I can.
What I've enjoyed the most about my experience with this nonprofit is...
Resolution of problem The information and education received and which I continue to receive in their newsletters. Th
The kinds of staff and volunteers that I met were...
Always helpful
If this organization had 10 million bucks, it could...
Continue to meet the needs of chronically ill patients, continue to educate, inform and advocate for patients.
Ways to make it better...
Nothing, completely resolved
In my opinion, the biggest challenges facing this organization are...
Growth, they need to let the chronically ill patients who need them know they are there for them. But with that they need continued funding.
One thing I'd also say is that...
If you're in need of assistance and advocacy not better place to go.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2009
