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Review for International Rett Syndrome Association, Cincinnati, OH, USA

Rating: 5 stars  

IRSF is a very well run organization. Our family has worked with IRSF for nine years, to organize fundraising events and raise awareness of Rett Syndrome. There is a personal connection with IRSF staff and families/community members involved. My daughter has benefited from the information IRSF provides. The IRSF staff and board members all have a personal involvement and drive to raise funds to find treatments and a cure that will better the lives of those affected with Rett Syndrome.

I've personally experienced the results of this organization in...

working with the staff at IRSF. I have volunteered in the office, and worked on various fundraising events. I have a daughter with Rett Syndrome who has been embraced by the office staff at IRSF.

If I had to make changes to this organization, I would...

Continued awareness of Rett Syndrome and what IRSF is doing to raise funds for Research to find treatments and a cure. The treatments and cure for Rett Syndrome will benefit many other disorders.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

How did you find this group?

They found us. They contacted us 10 years ago when our daughter was first diagnosed.

What, if any, change in your life has this group encouraged?

I have received support, continued educational information and a place to go to try to make life better for my daughter.

When was your last experience with this nonprofit?


Role:  Client Served & Organized fundraising events and awareness campaigns.