My Nonprofit Reviews
Chang
Review for New Jersey Chronic Fatigue Syndrome Association Inc. (NJCFSA), Florham Park, NJ, USA
The New Jersey Chronic Fatigue Syndrome Association is a very worthwhile organization that offers information to patients, as well as advocating for acknowledgement and treatment of this often ignored illness. When our daughter was diagnosed, they provided our family with information for the school system, as well as recommendations for competent physicians. Their conferences are always excellent, with wonderful speakers....indeed, we met our daughter's current physician at one of these conferences. This has made a tremendous difference in our daughter's quality of life.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
Review for New Jersey Chronic Fatigue Syndrome Association Inc. (NJCFSA), Florham Park, NJ, USA
NJCFSA gave me information when we needed it most, which was when we needed to deal with the school system concerning our daughter's inability to attend school. More important was the hope I gained when I met all the people dedicated to getting CFS recognized and treated. Lastly, the group presents an extremely informative conference on the latest research on CFS on a yearly basis. As a result of one of the conferences, I was able to find the physician who is currently treating my daughter.
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I've personally experienced the results of this organization in...
my ability to comprehend the research and treatment of CFS. I've also benefitted from the conferences the group organizes yearly. The quality and knowledge of the speakers is impressive--- always cutting-edge.
If I had to make changes to this organization, I would...
hope that they could find more volunteers as well as funds to continue to run the organization.
