My Nonprofit Reviews

As a fellow advocate in the epilepsy arena, and a family that has had a Service Dog, I respect this non profit, My Assistance Dog Inc, that Ed founded and operates. There is a lot of miseducation and myths out there when it comes to service dogs. Fortunately, Ed offers quality education and he shares the experience he has gained from being partnered with service dogs. He offers quality information.

I fell in love with Danny on Facebook! It's true--I first learned about the Danny Did Foundation on Facebook about a year and a half ago. It was shortly after Mike and Mariann Stanton started the foundation and corresponding Facebook page. His smile and personality came across loud and clear (from their Chicago location all the way to my home in California) in photos his family posted! Danny captivated me! His family let us all get to know him through photos with descriptive text. It didn't take long to fall in love with the whole Stanton family and witness their love for each other, their family, their neighborhood, and so on.

I have a 23 yr. old son with epilepsy--his first seizure was when he was 2 1/2 years old. My son was so much like Danny when he was in his preschool years--exuberant, athletic, eager to learn, always smiling, joking, laughing, and with hugs and love for everyone! I felt an instant connection because of our boys.

I have stayed pretty involved in different epilepsy communities online--wanting to reach out with encouragement and support to others, since we have a lot of experience under our belts living with a child with epilepsy. I say WE because living with epilepsy, does not just refer to the individual who has the diagnosis, it affects the whole family and friends too. I research and read a lot to try to stay ahead of the game--but epilepsy is still a mystery in so many ways...making it difficult to navigate and leaving many feeling frustrated and alone. Taking our story, our experience, what I've learned along the way--and giving back to others or coming alongside others is something I really enjoy doing. When I'm able to tell a parent of a child newly diagnosed with epilepsy-- "You aren't alone" "I've been in your shoes" "How can I help?" "I'm here to listen"--it empowers them and offers a lifeline in the midst of what can sometimes be a frightening, confusing, and isolating experience. There is one experience that I lack and can not say I have in common with people when they encounter it while dealing with epilepsy in their lives. There is one experience I haven't had that Mike and Mariann have--their son Danny died from SUDEP.

Sudden Unexplained (or Unexpected) Death in Epilepsy. Mike and Mariann's son Danny died from it. It wasn't my son... but I know it could have been. It could have been any one of the 3 million Americans affected by epilepsy or of the 50 million worldwide. The Stanton Family started, and are leading, the Danny Did Foundation with COURAGE, PASSION, and DEDICATION. The DDF is dedicated in its mission to prevent deaths (like Danny's) caused by seizures. I have chosen to support the Stanton family and the Danny Did Foundation because I believe in their mission, in their goals, in the fire and fight they carry in their hearts and in their heads, and finally because I believe in their boy--just like I believe in mine.

I wanted to spread Danny's smile, his story, and awareness of the Danny Did Foundation in Southern California. My initial contact to the Foundation was via email with DDF Executive Director Tom Stanton (aka Danny's uncle). I requested DDF silicone bracelets and SUDEP/Seizure Safety brochures to distribute at the Epilepsy Foundation Walk in Los Angeles where my son was captaining a team and our family and friends were walking together. The communication was encouraging and supportive. With approval from his family and the foundation, Danny was an "Honorary Hero"on our team. We stayed in touch with the DDF, and got to know another vital person to the Foundation--Mary Duffy, Chief Operating Officer. Mary is a neighbor of the Stanton Family--their kids all good buddies. Do you see a pattern of community in this Foundation? It's incredible!

One thing that I find attractive and appreciate about the Danny Did Foundation is their intergenerational intention in their goals, actions, and appeal. They recently sponsored an essay contest with a $1000 scholarship award encouraging eighth grade students in Chicago to address in their essays 1) The importance of helping non-profit foundations and 2) A projection of how to best introduce and incorporate the Danny Did Foundation into the high school experience. They awarded the winner in June at the DDF Hearts & Hugs event. Another great move?...The Danny Did Foundation has a Kids' Liaison! Mary Grace Stanton (Danny's sister) fills that role, and she's involved other kids by inviting them to complete and submit "Get Seizure Smart" quizzes. In return, she sends them a Danny Did bracelet. The Danny Did Foundation holds regular events--which appeal to children and adults.

The Danny Did Foundation has a definite presence in their local community and beyond. They have a knack for bringing people together...a diverse group of people united by Danny and a desire to prevent deaths caused by seizures.

I really can't express in this space all that there is to be said about the Danny Did Foundation. You'll need to go check out the Danny Did Foundation website at www.dannydid.org to explore and experience it for yourself. While you are there, be sure to check out the testimonies of what people are saying about the Danny Did Foundation. Oh, and you can leave a "Hey Danny," message on the home page.

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