My Nonprofit Reviews
Michelle
Review for Danny Did Foundation, Evanston, IL, USA
When Danny Stanton died of SUDEP, the Stanton's could not have known what an impact their little 4 year old boy would have on so many people. Being such an energetic, terrific kid, he was best friends with my nephew, Charlie. When we heard that Danny died that December morning, the sadness was overwhelming! Great kid, great family, great friends, How could this happen to them? Most of us assumed that Mike and Maryann would not be able to function after this tragedy. We hardly knew Danny, and we could not deal with his death. But, his parents persevered. Instead of climbing into bed and not coming out, they wanted to make it their mission raise awareness of SUDEP. During the time of their deepest sorrow, they were also thinking of others. My first reaction to Stanton's setting up the foundation was that of complete awe. How were they going to be able to do this? I hugged my kids extra tight for months, little things my own boys did made me cry, where were the Stantons getting this courage? But they have managed to take a complete tragedy and turn that around in honor of their son. They truly care about raising awareness of SUDEP and making sure that this doesn't happen to one more little boy or girl. Danny has become an angel. Through the DannyDid Foundation his message and love of life will protect our children.
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I've personally experienced the results of this organization in...
Countless people have asked me about DannyDid. We wear the pins, t-shirts & sweatshirts, people stop us & ask what it's about. The response is, "I know someone with Epilepsy". It gets the conversation going. We got our Cub Scout Pack involved in spreading the word. The information even raised awareness to one of our own families who has epilepsy in their family but, like the Stantons, never thought their child could die of Epilepsy.
If I had to make changes to this organization, I would...
We are always thinking of how we can incorporate Danny's memory into our activities so that we can continue to spread the word and raise awareness in SUDEP.
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
