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Colleen Paduani

319 profile views
1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

The NOMID Alliance has been a tremendous resource for me and my family. It's wonderful to have such support for patients and their families affected by less common diseases. The literature provided to me by The NOMID Alliance has been most helpful in educating my daughter's health care providers as well as teachers and extended family about her syndrome. Thank you NOMID Alliance for all that you have done to help my family and so many others!

I've personally experienced the results of this organization in...

The education and support I've received from the organization.

If I had to make changes to this organization, I would...

increase awareness of it's importance to so many and also funding to allow for even more to be reached.

Role:  Volunteer & Organized fundraising event to help support the organization.