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kari

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1 reviews

Review for Danny Did Foundation, Evanston, IL, USA

Rating: 5 stars  

I came about learning about Danny did through the epilepsy foundation of MN after we lost our 22 year old son to SUDEP. Their website is the place I have learned the most about seizures and unfortunately I already learned that a person can die from a seizure, in their sleep. The people at Dannydid are the most compassionate people I have spoken to and there determination and passion to get the awareness about SUDEP exceeds expectations so no other family has to go through what we did and what the Stantons have. I am hoping through Dannydid and what we are doing in MN we, together will find a solution so this never happens again. Patients need to be educated and know all what is out there to help with their seizures...not just mask it.

I've personally experienced the results of this organization in...

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If I had to make changes to this organization, I would...

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Role:  Volunteer & I became a liaison .