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Kevin L.

302 profile views
1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

My twin brother and I have lived with Muckle Wells Syndrome for 41 years before stumbling onto the NOMID Alliance website. Since that day, both of our lives have turned for the better. No more hearing loss, muscle ache, sore joints and rash flares. You need to spend the time and do your home work, doctors don't know everything. I applaud Karen for all her efforts in keeping the NOMiD Alliance alive..

Kevin

I've personally experienced the results of this organization in...

Dealing with a life long disease by finding the right doctors and medicine with the guidance given by this organization.

If I had to make changes to this organization, I would...

Continue working on awareness of special diseases.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Found the website

When was your last experience with this nonprofit?

2011

Role:  General Member of the Public & Received valuable information.