My Nonprofit Reviews
Hal A.
Review for International Myeloma Foundation, North Hollywood, CA, USA
When I was diagnosed with multiple myeloma in 1998, I quickly found out I had a lot to learn. A friend dragged me to a support group sponsored by the IMF. I learned much more useful information from my fellow patients than I did from my doctors and nurses. The patient-oriented brochures published by the IMF were good references that helped me learn a new vocabulary for dealing with my disease. Over the years when I have run into a problem for which nobody seemed to have the answer, I have turned to the IMF Hotline. If they didn't have an answer, they would refer the question to members of the Scientific Advisory Board and get back to me.
More Feedback
I've personally experienced the results of this organization in...
I give the IMF credit for helping me be a 13 year survivor of multiple myeloma which had a 2-3 year average survival when I was diagnosed.
If I had to make changes to this organization, I would...
Conduct more workshops in different parts of the country that are under-served.
