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Phoenix S.

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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

As an active member and participant of the 1p36 Deletion Support & Awareness group, we continue to learn on a daily basis thanks to knowledge and sharing that is fostered by them. Participation in their conferences and events has encouraged my family to be compassionate in life in general and to never lose hope because of others inabilities to be accepting. They have provided us with ideas, information, inspiration-on those rough days, and support that uplifts one's very being.

I've personally experienced the results of this organization in...

General asects of everyday life...

If I had to make changes to this organization, I would...

Continue it's wonderful growth and outreach to families, the medical community, and the general public.

Role:  Volunteer & helped with two conferences, attended countless event planning calls, provided input for establishment.