My Nonprofit Reviews
Review for Autoinflammatory Alliance, San Francisco, CA, USA
I was originally diagnosed with Muckle-Wells syndrome. The information provided by the nomid alliance on CAPS made me realize I had had most of the symptoms of NOMID at different times through the years. Therefore, I actually have a MWS/NOMID crossover. Most of my physicians are unfamiliar with CAPS. I provide them with brochures printed by nomid alliance to help them better understand my disease. Nomid Alliance has been very helpful to me.
I've personally experienced the results of this organization in...
learning more about CAPS.
If I had to make changes to this organization, I would...
make the public more aware of the information it provides.