My Nonprofit Reviews

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Karen M.

207 profile views
1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

Very helpful in connecting me with other patients and sourcing information from experts, especially when I fell pregnant. The pdf from website was invaluable in helping myself and my doctors evaluate my symptoms.

I've personally experienced the results of this organization in...

Australia

If I had to make changes to this organization, I would...

not really be able to think of many. I love the idea of a children's book and that idea seems to be on the cards.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

The person who runs it found me posting on a rare diseases forum.

What, if any, change in your life has this group encouraged?

Connecting with others that have a rare disease.

When was your last experience with this nonprofit?

2011

Role:  Client Served & Received information regarding a rare disease and connected with other patients.