My Nonprofit Reviews
Karen M.
332 profile views
1 reviews
Review for Autoinflammatory Alliance, San Francisco, CA, USA
Very helpful in connecting me with other patients and sourcing information from experts, especially when I fell pregnant. The pdf from website was invaluable in helping myself and my doctors evaluate my symptoms.
More Feedback
I've personally experienced the results of this organization in...
Australia
If I had to make changes to this organization, I would...
not really be able to think of many. I love the idea of a children's book and that idea seems to be on the cards.
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
The person who runs it found me posting on a rare diseases forum.
What, if any, change in your life has this group encouraged?
Connecting with others that have a rare disease.
When was your last experience with this nonprofit?
2011
Role: Client Served & Received information regarding a rare disease and connected with other patients.
