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Kim M.

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1 reviews

Review for Cure JM Foundation, Leesburg, VA, USA

Rating: 5 stars  

My son has an autoimmune disease (not JM) but we became familiar with the organization after having a hospital roommate with the disease. I have been very impressed by this grassroots organization, and wish that my son's disease had a support and fundraising network like this one. The strides these parents have made is no less than astounding, with serious contributions made to capital campaigns for serious research, networking between the affected children and parents, and providing a knowledge base that rivals some of the more well documented and supported chronic diseases. As a parent with a child who had a related illness, I have also benefited from this knowledge base, as many of the drugs and "tips" are the same. As a volunteer organization, it is well managed, and a labor of love, not burdened by ad campaigns or employee salaries. Your contribution makes a real impact on an underfunded, under-recognized, serious childhood disease here where it is needed most. As an "orphan" disease it receives little to no funding from government or healthcare sources. Supporting cure JM can really make an enormous impact, and for that reason, we are donors and supporters.

I've personally experienced the results of this organization in...

connecting with other parents, and firsthand contact with the researching doctors at Children's Memorial Hospital in Chicago.

If I had to make changes to this organization, I would...

keep the grassroots effort and feel, while trying to help them increase awareness. They are doing a great job with very limited resources.

Role:  Donor & I was a donor, and have used the knowlege base and support services of members.