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cejones

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1 reviews

Review for American Dystonia Society, Inc., Princeton Juntion, NJ, USA

Rating: 5 stars  

I hadn't heard of dystonia until I was recently diagnosed. Like most individuals today, my first resource for inofrmation was the internet. Thankfully, my internet search resulted in finding support and information from the American Dystonia Society.

I am so thankful for the helpful and useful information the Society has provided. When I was first diagnosed I was scared and confused, and the Society provided me with the resources, help and support I needed. The members of the Society provided me with information on treatment options, medications, and also tools to help with the pain and discomfort associated with the disorder.

I've personally experienced the results of this organization in...

This organization has helped me cope with the pain, and discomfort of this disorder, as well as the social diabilitation. It has allowed me to keep in touch with others who experience the same struggles and demons I deal with on a daily.

If I had to make changes to this organization, I would...

None

Role:  General Member of the Public & I offered my personal experiences with the disorder. Hopefully, my story provided support and help to other members and also to future members.