My Nonprofit Reviews
mkandrew
Review for Hepatitis C Association, Scotch Plains, NJ, USA
I first called Susie back in 2002, crying on the phone, scared to death and planning treatment with a new drug called Pegasys. Susie spent an hour with me, helping me understand this terrible disease. She helped me cope through humor, friendship, and I always felt her depth of compassion and concern for me. We're neighbors, but mainly talk on the phone now. And then so many members have come & gone - wonderful folks mostly, most of them lost to SVR & better health. Sue has also been a caring supporter as I've lost a dozen friends to HCV over the years. Now ten years later, here I am, crying on the phone to Susie, scared to death & planning tx with a new drug called Telaprevir. May God help us all make the right choices about these complex new drugs. I'll always be thankful for Sue's honest way of caring, which she does so well. I'll always admire her character, her non-judgmentalism, and her emotional generosity. I'm sure we all feel the same.
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I've personally experienced the results of this organization in...
The way I feel about myself - my journey from "infectee" to finally being able to see myself as a person, rather than a virus with arms & legs. Beneath all this mess, there's a person in there somewhere. My family and I have seen a lot more of him because of knowing Susie & Den. My association w/HCA has helped our family communication grow stronger.
If I had to make changes to this organization, I would...
Move the whole operation to a warmer climate. Denny could crank up a new boat (The Hep Sea?), and we could troll the Caribbean (maybe Hawaii) for big red Snapper! Er...while podcasting information, of course.
