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Renee P.

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1 reviews

Review for American Dystonia Society, Inc., Princeton Juntion, NJ, USA

Rating: 5 stars  

5 years have passed since I first had the symptoms of Dystonia. My neurologist continually said I had a seizure disorder. But the activity in my brain came back normal. I finally left that neurologist three years ago and found another one. That is when I found out about American Dystonia Society. It is the best place to be encouraged because others know exactly where you are coming from. They have the same problems as you and have been there done that. The ADS educates people brings them out of their shells, because many of us are immobile. We cannot go out as normal -people do. Also they provide literature free of charge to people with this illness. They are a great support when no one else seems to know what to do!

I've personally experienced the results of this organization in...

Keep this organization growing and well publicized! They are doing a great job!

If I had to make changes to this organization, I would...

Publicity and Local chapters would be great!

Role:  Client Served & I have participated in chat sessions, I have received literature on how to help myself.