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Alina

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1 reviews

Review for American Dystonia Society, Inc., Princeton Juntion, NJ, USA

Rating: 5 stars  

I found out about dystonia when my dad was diagnosed. I was a senior in high school. I had never heard of dystonia before and watched my father struggle as they tried to figure out what exactly was wrong with him. We later found out it was dystonia. American Dystonia Society does a great job of helping to spread awareness and allowing those with dystonia to spread their stories. Every year millions of dollars and hours are spent towards helping those with more well known disorders, such as Parkinson's and MS, and there are thousands of groups supporting cancer patients. Dystonia, however, is much less well known and it's patients much less supported. ADS helps to level the playing field.

I've personally experienced the results of this organization in...

My family.

If I had to make changes to this organization, I would...

help to reach those who are suffering from dystonia whose doctors can't diagnose it.

Role:  General Member of the Public & Was helped by ADS.