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1 reviews

Review for International Wagr Syndrome Association, Hanover , PA, USA

Rating: 5 stars  

Until I connected with I had not spoken with or seen another child with WAGR Syndrome. I had sought information regarding the cluster of symptoms and characteristics my child had from the time he was born, from the field of medicine and behavioral health. When I found my son was 20 years old. I sat at the computer and wept.

I've personally experienced the results of this organization in...

I know the behavioral and medical issues our children face, what to expect, what to share with the medical community regarding my child's challenges, and my family and I have a host of support for our family and our son.

If I had to make changes to this organization, I would...

I would not. The people involved with are knowledgeable, compassionate, and available for families. They are an informed and powerful resource for families of children with WAGR syndrome.

Role:  Client Served & I have presented information to the annual WAGR weekend meeting.