My Nonprofit Reviews
hope4us
Review for Pandora Org, Traverse City, MI, USA
PANDORA is such a needed voice for all patients with neuro-immune endocrine disorders. Not only do they advocate on a federal and local level they also assist patients with basic needs in the area. PANDORA gives all patients hope and dignity!
Review for Solve Me Cfs Initiative Inc, Glendale, CA, USA
The CFIDS Association proactively encourages ME/CFS researchers with seed grant money. They are fill a niche for small researchers to prove their hypothoses and then to obtain much bigger grants from the NIH.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Quite well
When was your last experience with this nonprofit?
2012
Review for Phoenix Rising An Neid Corporation, Santa Fe, NM, USA
Suffering with a poorly understood debilitating neuroimmune illness has wrecked havoc in my life. Phoenix Rising opened up my world to other sufferers just like me. They provided not only much needed information on medical care, treatments, and the latest research, but also a warm and supportive on-line community that reaches out to each other on a daily basis.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
Review for Solve Me Cfs Initiative Inc, Glendale, CA, USA
I have had CFS for 5 years and have went from working in excess of 40 hours per week when healthy, to part-time and last year to totally disabled. I have a lot of time to lie down and think each day and I believe that my best chance of getting well is to support the CFIDS Association.
This organization has and continues to provide funds for innovative research projects that would likely not be done otherwise. One of the projects is even coming close to finding the first biomarkers for this disease!
Biomarkers would help doctors, for the first time, to recognize this illness in their patients. And biomarkers would justify more research grants, especially from the government. But mostly, this horrible illness will come a big step closer to being understood, treated, and possibly cured one day. I am betting my life on the CFIDS Association.
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I've personally experienced the results of this organization in...
I receive daily updates of all CFS research, have been alerted to actions in Washington DC, and have learned from educational Webinars.
If I had to make changes to this organization, I would...
The only change that I would have made would be to concentrate efforts on just one area. And CFIDS Association has recently done exactly this by changing its focus to just research. I'm hoping our current knowledge will now take a huge leap forward this year and the next.
