My Nonprofit Reviews
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Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA
My son Ryan was diagnosed with Assymetrical Septal Hypertrophy which is a form of Hypertrophic cardiomyopathy at 8 wks. of age. We were dumbfounded to say the least. We always knew that my family had heart problems but it was not until we had Ryan that we learned the extent of this diseae. 12 years ago there was very little, if any information about this disease, let alone a Foundation that offered what CCF does.
The Children's Cardiomyopathy Foundation has been a God send to us! There are so many things that this organization has helped us with. Most importantly it has put me in touch with other cardiomyopathy families and made me feel like I am "NOT ALONE" in dealing with this disease. That in itself is the silver lining! Thanks so much for being there and all that you do!
More Feedback
I've personally experienced the results of this organization in...
In the help and information/resources that CCF have provided our family.
If I had to make changes to this organization, I would...
Not change a thing right now.
