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sue s

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1 reviews

Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA

Rating: 5 stars  

When our precious baby was diagnosed with DCM, we had so many questions and felt so alone. CCF was the light in the darkness that surrounded us. Here, we find answers to our questions and friends that can understand like no others. Heart disease is an every day strain in which new questions, issues, and triumphs constantly arise. CCF is always here for us. Besides the support that we and other families are thankful for, we hope that CCF will play a crucial role in new research to help find better treatments or even a cure for childhood cardiomyopathy.

I've personally experienced the results of this organization in...

Emotional support

If I had to make changes to this organization, I would...

probably not change a thing. We are working to arrange face to face group meetings with members and that would be amazing!

Role:  Client Served & support other members.