My Nonprofit Reviews
slburger
177 profile views
1 reviews
Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA
My son was diagnosed with Barth syndrome and DCM, he got a new heart when he was 3.5 months old. This group is a great way to help navigate through the constant questions and worries that come with having a family affected by cardiomyopathy.
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I've personally experienced the results of this organization in...
I have bounced questions off the members of the group and learned from their experience.
If I had to make changes to this organization, I would...
Make the posts more factual rather than emotional, although not solely.
Role: Client Served & My son had cardiomyopathy.
