My Nonprofit Reviews
Nickysmum
Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA
When my son was diagnosed with DCM I searched the internet looking for answers. I had never heard of cardiomyopathy until the day my son was diagnosed. The hospital had very limited information available and most of the other children on the cardiac ward had heart conditions that could be repaired/improved via an operation. I was fortunate enough to stumble across the CCF website and became a member of the forum straight away. The forum has helped me get through this tough stage in our lives and it is great to talk with other families who "get it" they understand EXACTLY what I am feeling. I have formed some fantastic friendships due to the forum with Mums both in Australia and the USA. I am so pleased that I found CCF as I don't know how I would have survived without it!
More Feedback
I've personally experienced the results of this organization in...
CCF provides families with valuable information in regards to research and also connecting us with a monthly cyberguest from a specific medical profession to answers our questions.
If I had to make changes to this organization, I would...
CCF is amazing, any donations/funding goes to a great cause in trying to find answers in the world of Pediatric Cardiomyopathy.
