My Nonprofit Reviews

My son, Taylor, was diagnosed with Fragile X nearly 24 years ago now. Much if the world saw how the cutting edge, breakthrough technology for Cornavirus vaccines and treatments could be life altering. FRAXA is the engine that is driving the work that could lead to treatments for Fragile X. This has been a great source of hope for our family as we imagining the day when Taylor is able to communicate better and do much more for himself. This research is a win-win for us all!

As we get older our friends are becoming more interested by the day in brain research. Alzheimer’s, Parkinson’s and dementia creep into our conversations, sometimes concern for an elder partner and sometimes my peers starting to get some signs there own health may not be as it once was. FRAXA has been advancing brain research for over 3 decades now, and never has there been a harder working charity. Fraxa leverages, works with volunteers, and influences science all on a tiny budget in the realm of brain research. If you want to get the most of every charitable dollar, this is the organization for you.

FRAXA Research Foundation has a clear mission to find treatments and ultimately a cure for Fragile X. Fragile X is similar to autism and in many cases it's a very debilitating mental disorder. Finding medications that could lessen the effects for a person struggling with Fragile X could dramatically impact quality of life. FRAXA not only funds the best research worldwide, but also acts as an intermediary between pharmaceutical companies, government agencies, researchers and families in an to advance this work. FRAXA does all of this with a very limited staff and on a shoestring budget, by very frugally spending money raised and by utilizing volunteers to fundraise and pitch in when possible. Few organizations do as much with as little as FRAXA Research Foundation. The brain research FRAXA funds will likely give us much greater insight into many other disorders including autism, Parkinson's, and Alzheimer's. Finding medications to treat mental impairment is the future and FRAXA is at the forefront of this work.

FRAXA is the future for our children. The research FRAXA is funding to find treatments for Fragile X is the future for our children. The medications that will be developed will be key for helping our children to live as happily and as independently as possible. And FRAXA funds and facilitates a tremendous amount of excellent research on a very small budget.

More Feedback

FRAXA began in 1994 with a dream of curing Fragile X -- now fast forward to 2011 -- there are currently clinical trials for medications to treat the core deficits of Fragile X going on in several centers around the country. Moonshot to the mind is the next frontier in medical research. Being a single gene disorder makes Fragile X a great model for other disorders of the brain as well, and could ultimately lead researchers to treatments for possibly autism, Parkinson's and Alzheimer's. FRAXA is an extremely efficient organization, and the people who are involved with FRAXA are totally committed to this cause. If you want your charitable dollars to really make a difference in the world, make a donation to FRAXA. My son is 14 years old and has Fragile X, and FRAXA gives me great hope that there will be medications in his lifetime that allow him to be happy and self-sufficient.

More Feedback