My Nonprofit Reviews
Olin Dodson
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
I first attended a CFRI event in 1990 and have followed/visited/donated at various times since then.
CFRI went throught a change in directorship several years ago and, unlike leadership transition in the many non-profit organizations I have been affiliated with, they continued to build strongly on their original vision and previous accomplishments.
One of the unique aspects of CFRI is their blend of the professional and the personal. I have dropped by their office with no advance notice or phoned up out of the blue, and I am always given the same patient attention as if I had an appointment. This sensitive orientation to individuals is important (almost unheard of) in health care organizations and doubly so where the stresses of cystic fibrosis are often immense on consumers and their families.
Having read more CFRI newsletters than I can remember, I also appreciate the organizational transparency. Donations, annual expenses,and the fiscal aspect of the organization is always clearly spelled out. They prioritize solidly: research and service first and salaries and overhead second.
I could write more, but I will conclude by simply saying CFRI is a special organization with a great history and a dynamic vision for the future. I am proud to be affiliated with CFRI as a loyal donor.
More Feedback
I've personally experienced the results of this organization in...
Since I do not live in the vicinity of CFRI, I follow their research summaries and reporting of their annual conference via on-line and mailed newsletters. I also know individuals with cystic fibrosis who have benefitted greatly from the support and contact they have had with CFRI throughout the years. I greatly appreciate their commitment to advocacy and education on CF to the greater community and the world.
If I had to make changes to this organization, I would...
CFRI is so solid and professional, I can't think of anything to improve what they are doing.
