My Nonprofit Reviews

Our first encounter with Dr. Perez was at the birth of our son in 1995. Dr. Perez was able to diagnose his problem as Tetrollogy of Fallot. From that time on not only did we count Dr. Perez as our doctor, but also our friend. When Dr. Perez passed away, we felt a great loss. We were very excited to be invited to the beginning of APHH, a picnic, given in Dr. Perez's honor. What we found in APHH was more than an organization that would have an event here and there, it became a lifeline to connecting with children and families that were experiencing some of the same fears and questions we were facing. We were able to talk to parents who knew about the things we knew about. APHH held a Big Hearts Big Adventures Family Fun Day & Mini Symposium a few weeks ago. There were speakers there that spoke about when our children reach a certain age they are considered legal adults and their medical issues would become a private mattere between them and their doctor. During her portion, I found myself realizing our family was just a few years away from that time. Another speaker spoke of making sure our children know about their condition and being able to tell the doctor themselves. This information was very important to me. The doctor who spoke for Joe DiMaggio Children's Hospital, was excellent and I learned of many of the advancements being made in heart surgeries, a comforting thought since our son has a surgery planned for June of this year. I appreciate APHH because it connects you with families that are currently in the same battle as we are. My husband and I have enjoyed connecting w/ these parents again and again to hear their successes and their sadnesses. We truly are grateful that even through a terrible tragedy, as the loss of Dr. Perez, that something wonderful has come of it and that is Angel's Pediatric Heart House.

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